NIH’s Genomic Data Sharing (GDS) Policy: Update

NIH’s Genomic Data Sharing (GDS) Policy: Update

Winter 2017

As a follow-up to our article on the NIH GDS policy in the Fall 2016 Research News, we are happy to report that our efforts to create SBU-specific guidance, GDS plan template, institutional certification, and consent language has been completed. We again thank our colleagues from Stanford University for their generosity in allowing us to ‘not re-invent the wheel’ when coming up with these documents.

We have added a special topic on Genomic Data Sharing for NIH grant submissions to our Standard Operating Procedures that includes guidance, instructions, FAQ’s, and resources regarding compliance with this NIH policy. Similarly, our CORIHS application and consent templates have been modified to capture necessary GDS information, and the GDS plan template (“Human Genomic Data Sharing Plan Template”) now resides within the forms and template area of IRBNet for your use.

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